Yes, it has been an interesting five years and as is often the case the story behind the story is even more interesting but it is long, complicated and slanderous to some involved and this is not the place to tell that story.
The AFGI stands for Aspiration w/Fibrin Glue Injection and is done by an Interventional Radiologist (Andrea’s was done by Dr. Kathuria at Johns Hopkins) and was developed by Dr. Donlin Long and a description can be found at his website (he’s listed in Google) under Clinical Practice / For Tarlov Cyst Patients. Andrea was/is one of the successes, her extreme tailbone pain during valsalva type events is gone.
I am heartened to hear your opinion regarding the challenge testing, we have experience with diagnostic injections and are familiar with the “general area” nature of the results and were concerned about the validity (both positive and negative) of this test.
We will move forward with having Andrea’s hardware removed, I’ll let you know how it turns out. Again thanks for your time on this.
Steve