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  • STAR
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    My daughter was diagnosed with multiple osteochondromas and fell in the small percentage of patients who had one that was in the c2 region, which was compressing her cord significantly and causing numbness/zings periodically on her right side. She had a laminectomy in December without fusion and recovered nicely, we thought. She was back playing sports with no issues in 6 weeks. Two weeks ago (four months post surgery) she complained of numbness in both legs and she said she felt like they were running and she couldn’t stop them. She has had similar episodes of this the past two weeks, off and on and also says she feels dizzy–the room is not spinning but she feels like the ground is moving under her feet and she feels off-balance. We had a full spine MRI and a brain MRI with nothing showing up, other than “some noise” where the compression was, though in comparison to the pre-surgery MRI, it was much less. We met with her surgeon and he thought the dizziness was unusual and unrelated to the compression so he wants her to see a neurologist. Unfortunately, we can’t get in until July and she’s struggling with these episodes daily, which also scare and frustrate her. He also said it was atypical for her to have these episodes now, when she had been doing so well.The surgeon also recommended PT so she starts that next week since she still leans to the right when walking/running, which is related to the spinal compression. He also said she could try wearing an Aspen collar for awhile to see if symptoms improved and if so, that might indicate some instability that was not indicated on the new MRI. She is trying that, too, since we are ready to try anything to see her active and experiencing a normal childhood. She does have osteochondromas on the outside of her knees but he dismissed that as causing any of these problems. She had bloodwork done with her regular doctor and everything came back normal. That doctor suggested there might be some anxiety-related issues but she is not a high anxious child and she’s really not showing signs of a panic attack when these episodes occur–she’s more angry that it happened again and will try to keep playing/doing what she was doing, even if it means crawling around the house until she can balance/walk well. The surgeon did not think it was anxiety related. is there anything else we can do to help her? Any other tests that should be done? any insight would be great since we’re feeling helpless. Thanks!

    Donald Corenman, MD, DC
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    Post count: 8660

    Osteochondromatosis or hereditary multiple exostoses causes abnormal growth of the bony growth centers. These growths look like a cauliflower in shape. I have never seen one grow at C2 and compression of the spinal cord can obviously result.

    If the growth was originating from the back of the canal, the laminectomy is the procedure of choice. Laminectomy however can cause some issues as some major muscles insert onto C2. Make sure there is no instability of C2 by having flexion/extension films and lateral bending films performed.

    I am not sure what you mean by “some noise where the compression was”. Is signal change in the spinal cord present? This might indicate cord injury which might explain some of your daughters symptoms.

    Since it is very unusual for these osteochondromas to grow in the spinal canal, I would also have a brain MRI performed for the even rarer chance of potential growths off the skull.

    The osteochondromas in the knees can grow where the peroneal nerves cross the fibular head (the lateral aspect of the upper knee) and affect this set of nerves. This can possibly also cause some lower leg symptoms.

    Dr. Corenman

    PLEASE REMEMBER, THIS FORUM IS MEANT TO PROVIDE GENERAL INFORMATION ON SPINE ANATOMY, CONDITIONS AND TREATMENTS. TO GET AN ACCURATE DIAGNOSIS, YOU MUST VISIT A QUALIFIED PROFESSIONAL IN PERSON.
     
    Donald Corenman, MD, DC is a highly-regarded spine surgeon, considered an expert in the area of neck and back pain. Trained as both a Medical Doctor and Doctor of Chiropractic, Dr. Corenman earned academic appointments as Clinical Assistant Professor and Assistant Professor of Orthopaedic Surgery at the University of Colorado Health Sciences Center, and his research on spine surgery and rehabilitation has resulted in the publication of multiple peer-reviewed articles and two books.
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